PPI strategy

We aim to involve patients and the public at every stage of the research cycle, ensuring that we carry out research that reflects issues considered important and relevant to those potentially affected by it.

Clinician talking with a patient

Our Public and Patient Involvement strategy consists of six themes, all of which we believe are essential in ensuring meaningful PPI occurs for BRC-funded research. Many of these areas include strands of work that have been previously established but that will be expanded upon and improved. We aim to place NIHR Biomedical Research Centre at The Royal Marsden and The Institute of Cancer Research at the forefront of patient and public involvement in cancer research and ensure that the future strategic direction of the BRC is shaped and underpinned by guidance from targeted patient and public involvement.

Areas 1 – 4 are focused on involving patients in the development of research.

Areas 5 – 6 are focused on engaging patients in the research that is on-going or completed.
 

1. Prioritisation and input into research ideas 

  • To ensure that patients, carers and the public have a voice in prioritising what BRC research should be carried out

2. Input into study design

  • To involve and consult with patients, carers and the public within every research project at appropriate points in the research cycle

3. Training (researchers, trainees, support staff) 

  • To demonstrate to researchers where patient knowledge could have an impact on the quality of their research design, ensuring that best practice is shared
     
  • To ensure that all researchers are trained in the need for PPI and receive support from the PPI manager/lead and BRC team

4. Training (patient involvement representatives) 

  • To maintain and update the development programme for BRC patient representatives, members of the Patient and Carer Research Review Panel (PCRRP) and this reflects external advisory sources e.g. INVOLVE and internal requirements
     
  • To ensure that patient representatives have clear expectations set, the confidence to input fully into discussions and adequate scientific/clinical training when required to ensure that concepts are fully understood
     
  • To develop Patient Leaders/Champions in the main themes of research in the BRC programmes

5. Information outlets 

  • To keep patients, carers and the public informed of our research and research/involvement opportunities through a variety of channels of communication
     
  • To ensure wide understanding and appreciation of research outputs of The Royal Marsden and the ICR that impact on patient wellbeing

6. Events

  • To keep patients, carers and the public informed of our research and research/involvement opportunities through a variety of channels of communication
     
  • To ensure wide understanding and appreciation of research outputs of The Royal Marsden and the ICR that have an impact on patient wellbeing