We want patients, carers and the public to be engaged and involved throughout all stages of our research to help us find smarter, kinder and more effective treatments. There are many ways that we involve patients, carers and the public with our research, from identifying key issues, to undertaking research and evaluating its impact, and talking to others about our research. Image Our Patient and Public Involvement and Engagement (PPI/E) Strategy Our PPI/E Strategy (2017 - 22) details how we involve patients, carers and the public in our clinical research. Involvement helps us to identify the issues most important and relevant to those directly affected by cancer and its treatments. Patients, carers and the public support us in every stage of our research by: Identifying important issues that could be addressed by research, such as treatment side effects Ensuring that the materials we produce for patients and the public, such as leaflets, are informative and easy to understand. You can read our PPI/E 2017 - 2022 strategy here What is patient and public involvement and engagement (PPI/E)? Patient and public involvement in research is being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. This can include a wide range of activities, from commenting on and developing research materials to joining a project steering committee and offering advice. Public engagement is the sharing and provision of research information and knowledge to the public. This can include open days at research centres, sharing findings of a study and raising awareness of research through the media. NIHR INVOLVE provides further information on patient and public involvement in research. Contact us Dr Markella Boudioni - Patient and Public Involvement and Engagement Lead General enquiries - [email protected]
BRC patient representatives: our experiences Find out more about how the BRC works with patient representatives and what motivates them to get involved in research Find out more
