Getting involved in research as a patient, carer or member of the public

Patients, carers and members of the public can be involved or engaged in any research we undertake at the NIHR Biomedical Research Centre (BRC) at The Royal Marsden and The Institute of Cancer Research, London.

Why should I get involved in research?

We would like to work with you to research new and better cancer treatments and improve cancer care.

As a current or former patient, carer or member of the public, you can provide an invaluable insight into what it is like to live with and beyond cancer, or to care for someone with cancer, and what is like to receive treatment and the impact its side effects have on your quality of life.

By becoming involved in research, you can:

  • Help researchers understand what matters most to patients
  • Challenge and shape decisions about research
  • Help researchers 'design' research that is easier for patients to understand
  • Help change or improve the delivery of research treatment to make it easier or less burdensome for patients
  • Help improve future treatments and diagnosis 

Why is diversity in Patient and Public Involvement and Engagement important?

We want our research to address the problems and challenges that people with cancer face. The only way to do this is by asking people with cancer what they struggle with and assuring our research meets these needs. By involving diverse voices, we aim to ensure our research functions best for the many communities and groups we serve. 

Discover more by reading our Equality, Diversity and Inclusion statement.

Listen to the video below to discover why diversity is important from those who have been involved and engaged in our research.

What opportunities are available and how can I get involved?

There are several ways you can get involved with or be engaged in our research, such as:

  • Attending events such as open days or trainings for patients, carers and the public
  • Providing suggestions and feedback on our research documents, i.e., participant information sheets, clinical trial documents or leaflets
  • Becoming a member of the Patient and Carer Research Review Panel where you'll have opportunities to discuss research proposals and contribute to the formal review process for clinical trials
  • Getting involved in our research online via the Cancer Patients' Voice Platform
  • Or you may even decide to become involved with our research as a contributor or co-applicant.

If you're interested in getting involved in our research, complete the PPIE registration form and we will be in touch to discuss opportunities for you to be included in  and what support and training we can provide. 

If you would like a paper version of the registration form, please email [email protected]

Alternatively, you can write to us at:

Patient and Public Involvement and Engagement

c/o Markella Boudioni

The Royal Marsden Hospital

Fulham Road

London

SW3 6JJ

Further information

Training and Support

We offer training and support for those who want to get involved in or are already involved in BRC research. 

Our Stories

Hear from some of our Patients Representatives about their experience of getting involved in research.

If you'd like to be involved in research online, check out some of the studies we have available below.